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Posts by Suzanne D Vernon, PhD

Healthy Volunteers Help Drive Research Forward

For decades, no one has known what causes myalgic encephalomyelitis (ME, commonly called ME/CFS). As a result, this debilitating disease has been very difficult to diagnose and even harder to treat. Funded by a major grant from the National Institutes of Health (NIH), Bateman Horne Center is studying the biology of ME/CFS in unprecedented detail.…

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BHC Participates in NIH-Sponsored ME/CFS Meeting

The NIH will host 3 days of meetings focusing on ME/CFS research. The meeting on April 3 is titled, “Thinking the Future: A Workshop for Young Early Career ME/CFS Investigators”.  This is followed on April 4–5 with a meeting titled, “Accelerating Research on ME/CFS”.  The presentations for this meeting will be given by the veteran…

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Genetics and Epigenetics in ME/CFS

This is one of the largest ME/CFS epigenetic studies to date and identifies new genetic and epigenetic associations relevant to ME/CFS and useful for the development of new treatments. Samples from a well-defined clinic population of ME/CFS patients were used.

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Cutting Edge Technology for ME/CFS Biomarker Discovery

Antibodies are Y-shaped proteins that are produced by B cells of our immune system to specifically recognize and bind antigens.  Antigens are molecules that instigate antibody production and can be from an invading pathogen or from our own body.  Each antibody recognizes a specific antigen creating a repertoire of millions of distinct antibodies that can neutralize invaders or…

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Progress in ME/CFS Subset Identification

When it comes to biomarker discovery and clinical trials, disease heterogeneity is the bane of clinical researchers existence. I am showing my age here, but think of it like static on the radio: too much noisy static makes it hard to hear the nice music sound and when you tune in, the signal is loud…

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Dream Teams Assemble to Advance Research

Research Dream Team

“Advancing Research” is central to Bateman Horne Centers’ mission of empowering patients and improving clinical care for ME/CFS and FM.  The trick of course is figuring out the best way to advance research. This is a decision any organization targeting research into these complex conditions must wrestle with. At the 2016 IACFSME conference it was…

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Differences So Clear

differences so clear

  New Research Brings Clear Differences to Light in ME/CFS by Suzanne D. Vernon, PhD  |  BHC Research Liaison There is a great song in the musical RENT titled “Seasons of Love” in which they sing about the number of minutes in a year. As I am reviewing and writing this summary of the recent paper, “Epigenetic…

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Standardizing Measurement of ME/CFS Core Symptoms

core symptoms of ME/CFS

Dr. Suzanne D. Vernon, BHC research liaison, explains how the IOM report defining the core symptoms of ME/CFS also define the BHC research roadmap. ________ At the October 2012 CFS Advisory Committee meeting Dr. Sandra Kweder, Deputy Director of the Office of New Drugs at the FDA stated, “When there is confusion, lack of consensus…

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A Report of Research Progress in 2016

Research Progress

Because of the investment of many supporters – donors large and small – the Bateman Horne Center (BHC) has been able to partner with cutting-edge researchers across the globe. BHC works directly with researchers to enroll well-categorized patients into their research, providing samples with material transfer agreements in place so that we continue to learn from…

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What’s the Buzz – July

Whats the Buzz

  Buzz – July: Each month we scour the Internet and bring you a list of news articles, blogs and research publications we think you’ll find interesting for our What’s the Buzz post. Occasionally, we’ll highlight and summarize a few of them for you, like this one:   Could Difference in Gut Bacteria Help Explain ME/CFS Symptoms? Suzanne D.…

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