We See You. You are Not Missing to Us.
On May 12th, individuals around the globe will be celebrating International ME/CFS and Fibromyalgia Awareness Day. The May 12th date was chosen because it is Florence Nightingale’s birthday and she was believed to have suffered from ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome), a chronic disabling multi-system illness that remains misunderstood, underfunded in research, and even trivialized by some today.
Read MoreHealthy Volunteers Help Drive Research Forward
For decades, no one has known what causes myalgic encephalomyelitis (ME, commonly called ME/CFS). As a result, this debilitating disease has been very difficult to diagnose and even harder to treat. Funded by a major grant from the National Institutes of Health (NIH), Bateman Horne Center is studying the biology of ME/CFS in unprecedented detail.…
Read MoreWhat’s Next for the ME/CFS Clinician Coalition?
On March 15-16, leading ME/CFS clinicians from across the United States gathered in Salt Lake City for the second annual ME/CFS Expert Clinician Summit. The goal of this summit was to grow the collaborative network of disease experts, identify ways to expand their ranks and improve the clinical care of patients with ME/CFS, and accelerate…
Read MoreBHC Participates in NIH-Sponsored ME/CFS Meeting
The NIH will host 3 days of meetings focusing on ME/CFS research. The meeting on April 3 is titled, “Thinking the Future: A Workshop for Young Early Career ME/CFS Investigators”. This is followed on April 4–5 with a meeting titled, “Accelerating Research on ME/CFS”. The presentations for this meeting will be given by the veteran…
Read MorePelvic Health and Chronic Illness
We were pleased to host Dr. Lauren Johnson—Doctor of Physical Therapy and current Director of the Pelvic Physical Therapy and Wellness Clinic in the Salt Lake City, Utah for our March Education Meeting. In this presentation, Dr. Johnson taught about pelvic health, how pelvic symptoms relate to ME/CFS and fibromyalgia symptoms, and how professionals can…
Read MoreME/CFS Clinicians Reconvene in Salt Lake City
Leading U.S. ME/CFS experts will convene for the Second Annual ME/CFS Clinician Summit on March 15-16 in Salt Lake City, Utah. This event is significant because it marks progress and forward momentum for this dedicated group as they tackle the ambitious goal of mainstreaming ME/CFS in the medical community and improving the clinical care of people…
Read MoreJonas Blomberg: BHC Remembers A Gentle Soul and Bright Scientist
Dr. Bateman shares, “When I first met Jonas, while in Sweden in 2016 to deliver a lecture on the IOM clinical diagnostic criteria for ME/CFS, I sensed immediately that he had a keen scientific mind and was genuinely intrigued by ME/CFS. We had several conversations about the clinical manifestations of ME/CFS…
Read MoreNew Research: Gene Variations in ME/CFS
This is one of the largest ME/CFS epigenetic studies to date and identifies new genetic and epigenetic associations relevant to ME/CFS and useful for the development of new treatments. Samples from a well-defined clinic population of ME/CFS patients were used.
Read MoreGenetics and Epigenetics in ME/CFS
This is one of the largest ME/CFS epigenetic studies to date and identifies new genetic and epigenetic associations relevant to ME/CFS and useful for the development of new treatments. Samples from a well-defined clinic population of ME/CFS patients were used.
Read MoreBateman Horne Center’s Journey
Dr. Bateman delivers an update on the progress and impact BHC has made in the last five years as a 501 (c)3 nonprofit dedicated to those suffering from ME/CFS and FM. She updates the community on our move towards a multi-specialty clinic and a teaching institution.
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