Honoring Nearly Two Decades of Service
Beloved member of BHC family retires after 17 years A message from Valene Archibald as she retires after nearly two decades of service to the Bateman Horne Center. Sending her love and gratitude to Dr. B and the many patients she came to know and care so deeply for… Dear Patients and Friends, As some…
Read MoreCFSAC Education Workgroups Seeking Patient Input
BHC has converted their questions into a simple online questionnaire The Chronic Fatigue Syndrome Advisory Committee (CFSAC) provides advice and recommendations to the Secretary of Health and Human Services (HHS) through the Assistant Secretary for Health on issues related to myalgic encephalomyelitis and chronic fatigue syndrome (ME/CFS). Administrative and management support for CFSAC is provided by…
Read MoreNASA 10-Minute Lean Test
A Simple Way to Assess Orthostatic Intolerance On June 7, 2017, at the monthly BHC Education Meeting, Pelle Wall, BHC Research Coordinator, reviewed the procedure and shared information about the research underway. Orthostatic intolerance (OI) is an umbrella term used to describe abnormal autonomic nervous system response to orthostatic challenge. Orthostatic hypotension (OH), neurally mediated hypotension (NMH) [or…
Read MoreDream Teams Assemble to Advance Research
“Advancing Research” is central to Bateman Horne Centers’ mission of empowering patients and improving clinical care for ME/CFS and FM. The trick of course is figuring out the best way to advance research. This is a decision any organization targeting research into these complex conditions must wrestle with. At the 2016 IACFSME conference it was…
Read MoreOpen House Offers a Glimpse of BHC Progress
In 2015, the Bateman Horne Center began a transformation. Once the Fatigue Consultation Clinic (FCC) and the Organization for Fatigue & Fibromyalgia Education & Research (OFFER), two separate organizations with regional footprint came together to make a global impact. A small handful of donors invested greatly in our dream and ensured we had the resources needed to…
Read MorePatient Voice – Meditate to Find Peace
Three years ago, Megan Hastings began most mornings with a quick run and some meditation. Today, the effects of her illness make running impossible, but she finds she can meditate to bring comfort and peace. The practice helps her to reduce stress, increase self-awareness, happiness and acceptance. Megan, mother to three and devotee to her best friend, has a…
Read MoreNot Without ME
A Research Update On May 3rd, at the monthly BHC Education Meeting, Linda Avey and Suzanne D. Vernon, PhD discussed their cutting-edge research collaboration. Linda described how her team is working together with the Bateman Horne Center to track data, chart experiences and find patient-generated answers using Precise.ly. Suzanne shared the results of an ME/CFS…
Read MoreMay 12 ME/CFS FM Awareness Day Celebrates 25 Years
On May 12th, individuals around the globe will be celebrating International ME/CFS and Fibromyalgia Awareness Day and 2017 marks the 25th anniversary. The May 12th date was chosen because it is Florence Nightingale’s birthday and she was believed to have suffered from ME/CFS. Every year a number of events are held to celebrate and highlight May 12th…
Read MorePatient Voice – Look For Surprises
Still reeling from her diagnosis, Nicole shares how three surprises took her down a path that led her to help, hope and BHC. Nicole Paolucci Rabanal is a wife, mother, friend and physical therapists from Steamboat Springs CO. Upon returning to health she looks forward to living her life fully again as a wife, mother,…
Read MoreLiving With a Partner Who Has ME/CFS or FM
Chronic illness and marriage is a complicated combination. It’s rare to see or hear a healthy spouse’s perspective on their partner’s disease because it is a topic that can be very difficult – as much for the one speaking as for the one hearing it. With an estimated divorce rate as high as 75% among…
Read More