News & Blog

A Good Day…

-Margo This was submitted as part of the Reflections of ME/CFS and FM and Long COVID Awareness Day Virtual Event on May 9th, 2023. #MillionsMissing #MillionsMore #Hope4MECFS #Hope4FM #Hope4LongCOVID #patiencevoice

Watching the World

Watching the World

Watching the World   I open the door from my room I watch the world People in school for degrees People on sunny sandy beaches People winning awards People on trips with friends I love watching everything I dream of joining in I wonder about being part I close...

Medicated Faith

Medicated Faith

Medicated Faith   “Holy orange bottles, each night, I pray to you" -Taylor Swift: Soon You'll Get Better   A prayer to my orange bottles:   I spent 4 months to get you Endless rounds of blood work- turning up nothing "Goodbye blood" Go off and finally...

Resilience

Resilience

Resilience   You’re sick isn’t worthy.  No ribbon, no run. Not dying, not living.  Just a life come undone.   Tests do not show, The battles you’ve fought. Some will believe you,  Others will not.   You’ve lost all your shine. You’re just not the same....

My Eyes

My Eyes

My Eyes Many sights once blessed my eyes: Candlelight flickering against cold walls, illuminating my song. Melismatic music fluttering across pages like butterflies made of notes. Steady silhouettes of an anticipating audience, eager for my next line. Elastic on my...

The Alone

The Alone

The Alone   One Room, four walls, two windows, one door and one bed. The Alone Minimal Silent   To survive in The Alone acceptance is mandatory No choice Letting go Floating, untethered Existing in a void rather than a place   Dry and suffocating The...

A Good Day…

-Margo This was submitted as part of the Reflections of ME/CFS and FM and Long COVID Awareness Day Virtual Event on May 9th, 2023. #MillionsMissing #MillionsMore #Hope4MECFS #Hope4FM #Hope4LongCOVID #patiencevoice

Watching the World

Watching the World

Watching the World   I open the door from my room I watch the world People in school for degrees People on sunny sandy beaches People winning awards People on trips with friends I love watching everything I dream of joining in I wonder about being part I close...

Medicated Faith

Medicated Faith

Medicated Faith   “Holy orange bottles, each night, I pray to you" -Taylor Swift: Soon You'll Get Better   A prayer to my orange bottles:   I spent 4 months to get you Endless rounds of blood work- turning up nothing "Goodbye blood" Go off and finally...

Resilience

Resilience

Resilience   You’re sick isn’t worthy.  No ribbon, no run. Not dying, not living.  Just a life come undone.   Tests do not show, The battles you’ve fought. Some will believe you,  Others will not.   You’ve lost all your shine. You’re just not the same....

My Eyes

My Eyes

My Eyes Many sights once blessed my eyes: Candlelight flickering against cold walls, illuminating my song. Melismatic music fluttering across pages like butterflies made of notes. Steady silhouettes of an anticipating audience, eager for my next line. Elastic on my...

The Alone

The Alone

The Alone   One Room, four walls, two windows, one door and one bed. The Alone Minimal Silent   To survive in The Alone acceptance is mandatory No choice Letting go Floating, untethered Existing in a void rather than a place   Dry and suffocating The...