by Leigh | Jul 19, 2016 | BHC News, Fibromyalgia, ME/CFS, Patient Voice
This past May – May 12th International ME/CFS and FM Awareness Day – BHC patient and friend, Jo Ivie, decided to put a positive spin on the day and do something personal and close to home – she hosted a Chronically Ill Tea Party. We thought it was...
by Leigh | Jul 8, 2016 | ME/CFS, Patient Voice
Relief can come in the smallest of moments and simplest of gestures. In this edition of the Patient Voice, Darla shares how a brief conversation with an empathetic professor gave her the release and instant relief she had prayed for just moments before. Darla is a...
by Leigh | Jul 6, 2016 | ME/CFS, Patient Education
ME/CFS presents additional complexities when making decisions about childbearing. There are options for building a strong network of support to manage pregnancy and help cope with the challenges of parenting with ME/CFS. We hope the following information can help....
by Leigh | Jun 29, 2016 | BHC News, ME/CFS, Research News
BHC prepared the following response the NIH Request For Information (RFI) regarding the future of ME/CFS research Sixteen different centers within the NIH sought input concerning new research strategies for ME/CFS. They asked patients and advocates to tell the...
by Leigh | Jun 21, 2016 | ME/CFS, Research News
CFS Patient-centered outreach and communication activity (PCOCA) Conference Call Thursday, June 23, 2016 3:00 pm – 4:00 pm EDT Call number: 1-800-369-2100 Participant Code: 7673924 The latest of the US Centers for Disease Control’s (CDC’s)...