Chronically Ill Tea Party

Chronically Ill Tea Party

This past May – May 12th International ME/CFS and FM Awareness Day – BHC patient and friend, Jo Ivie, decided to put a positive spin on the day and do something personal and close to home – she hosted a Chronically Ill Tea Party. We thought it was...
Instant Relief

Instant Relief

Relief can come in the smallest of moments and simplest of gestures. In this edition of the Patient Voice, Darla shares how a brief conversation with an empathetic professor gave her the release and instant relief she had prayed for just moments before. Darla is a...
Pregnancy and ME/CFS

Pregnancy and ME/CFS

ME/CFS presents additional complexities when making decisions about childbearing. There are options for building a strong network of support to manage pregnancy and help cope with the challenges of parenting with ME/CFS. We hope the following information can help....
Bateman Horne Center Response to NIH RFI

Bateman Horne Center Response to NIH RFI

BHC prepared the following response the NIH Request For Information (RFI) regarding the future of ME/CFS research Sixteen different centers within the NIH sought input concerning new research strategies for ME/CFS. They asked patients and advocates to tell the...
CDC CFS Patient-Centered Outreach Call

CDC CFS Patient-Centered Outreach Call

CFS Patient-centered outreach and communication activity (PCOCA) Conference Call Thursday, June 23, 2016 3:00 pm – 4:00 pm EDT   Call number: 1-800-369-2100 Participant Code: 7673924     The latest of the US Centers for Disease Control’s (CDC’s)...