NIH Charting It’s Course for ME/CFS

NIH Charting It’s Course for ME/CFS

Sixteen different centers within the NIH have come together to seek input concerning new research strategies for ME/CFS. They are asking patients and patient advocates to tell the Trans-NIH Working Group on ME/CFS what kind of opportunities there are for studying the...
Facebook Friend Extends Real-Life Act of Kindness

Facebook Friend Extends Real-Life Act of Kindness

In this entry to the Patient Voice, Mark tells us about a time when he was met with a radical kindness that he didn’t expect – all because of a simple Facebook post. Mark shares how he has found the chronic illness community to be one of great kindness...
Patient Voice – Unexpected Kindness

Patient Voice – Unexpected Kindness

Topic for June/July : “Tell us about a time when someone showed you unexpected kindness and it had a positive impact on you as you manage your chronic illness” The personal motivation that led Dr. Bateman to open the Fatigue Consultation Clinic (FCC) and start the...
The Trifecta

The Trifecta

In this edition of the Patient Voice, Mae Beth writes about facing the trifecta of Fibromyalgia, ME/CFS, and breast cancer in her life. When Dr. Bateman, who recently battled breast cancer as well, encouraged Mae Beth to share her story she was inspired to write her...