Meet Our Instructors
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Bridging the Gap: A Decade of Knowledge in One Freely Accessible GuideÂ
Bridging the Gap: A Decade of Knowledge in One Freely Accessible Guide In our last post, we...
Read MoreOne Guide. One Goal. A Campaign to Change Knowledge to Care
At BHC, we believe that no one should suffer alone —and no clinician should be without the tools...
Read MoreStepping into the Future: Tahlia Ruschioni Named Executive Director of Bateman Horne Center
A New Chapter at BHC: Rooted in Experience, Leading with Purpose As millions grapple with the...
Read MoreThe Youngest Victims: A Mother’s Perspective on Long COVID Research and the ME/CFS Reality We’ve Lived
As a mother who has watched my child suffer with ME/CFS for ten years, I felt a complex mix of...
Read MoreA New Path for ME/CFS and Long COVID Research
This National Clinical Trials Day, the Bateman Horne Center calls for a shift in how we fund and...
Read MoreTravel and Crash Considerations
Chapter 14: Traveling, while wonderful, can put you at risk for a crash. The increased energy expenditure physically, cognitively, and emotionally can use up your energy reserves more quickly than you would think. Here are some tips that may help you have less chance of crashing and use your energy more slowly.
Making the Decision to Seek Emergency Care
Chapter 13: First and foremost, KEEP IT SIMPLE! It is not your job to diagnose what is wrong. If you or your caregiver think you should go to urgent care or the ER, then you should probably go.
Thoughts of Suicide
Chapter 12: When the body first becomes sick, it can be mentally, emotionally, and physically draining to the affected individual as the body struggles to regulate itself. This process can be incredibly overwhelming as the patient tries to find the vocabulary to describe what is happening to them.
Living with a Chronic Illness and Avoiding a Crash
Chapter 11: While living with ME/CFS, it is vital to learn the art of preventing and minimizing PEM and a subsequent crash. While not in a crash state, familiarize yourself with resources that can assist you in conserving energy and apply these following concepts to your everyday life.
Nurture Yourself
Chapter 10: When living with ME/CFS, it may be tempting to let your mind fixate on what caused the illness or a crash. You may even feel yourself slipping into a state of self-blame. Simply put, this is not helpful to your crash recovery and is not supportive when living with the disease.
Activities of Daily Living
Chapter 9: Activities of daily living, known as ADLs, are tasks that involve self-care. Common ADLs include personal hygiene, bathing, toileting, dressing, eating, sleeping, and moving around in our environments. These tasks are often carried out without awareness of the energy demand that can be placed on our bodies while performing the task.
Teaching Scientists About Brain Fog
Bateman Horne Center is honored to have a guest message by Janet Dafoe. She is a caregiver for her very severe ME/CFS son, advocate and fundraiser for the End ME/CFS Project at Open Medicine Foundation and CFSRC at Stanford. Follow her on Twitter at @JanetDafoe. Ron...
Nutrition and Hydration
Chapter 8: The following are examples of quick, easy, nutrient-rich foods and hydration options that can be integrated into everyday living with ME/CFS, orthostatic intolerance, and during a crash. In living with ME/CFS you may experience fluctuating motility, stomach and body sensitivities, nausea, etc. Be careful when introducing any new items into your system. Start slow, work with your medical care team while being mindful of any known intolerances or mast cell triggering substances.
Medication
Chapter 7: Brain fog can make it easy to forget your medication routine when you are experiencing PEM or moving into a crash. Delayed or missed medications can exacerbate a crash and/or slow your crash recovery.
Turn Down the Volume & Allow Recovery
Chapter 6: There are many environmental triggers and stimuli that can precipitate and/or prolong crash recovery. Try to minimize all energy demands, sensory and physical stimuli, and allow your body the space to restore and recharge.
Bridging the Gap: A Decade of Knowledge in One Freely Accessible GuideÂ
Bridging the Gap: A Decade of Knowledge in One Freely Accessible Guide In our last post, we...
Read MoreOne Guide. One Goal. A Campaign to Change Knowledge to Care
At BHC, we believe that no one should suffer alone —and no clinician should be without the tools...
Read MoreStepping into the Future: Tahlia Ruschioni Named Executive Director of Bateman Horne Center
A New Chapter at BHC: Rooted in Experience, Leading with Purpose As millions grapple with the...
Read MoreThe Youngest Victims: A Mother’s Perspective on Long COVID Research and the ME/CFS Reality We’ve Lived
As a mother who has watched my child suffer with ME/CFS for ten years, I felt a complex mix of...
Read MoreA New Path for ME/CFS and Long COVID Research
This National Clinical Trials Day, the Bateman Horne Center calls for a shift in how we fund and...
Read MoreA Roadmap to Better Care
A Roadmap to Better Care: Clinical Care Guide for ME/CFS, Long COVID & Infection-Associated...
Read MoreKnowledge Shared, Lives Changed through MERC
The Medical Education Resource Center (MERC) was founded by Open Medicine Foundation and Bateman Horne Center to inform clinicians about ME/CFS and other complex infection-associated chronic conditions.
Read MoreBridging Borders to Advance ME/CFS Care
Bateman Horne Center Bridges Borders to ME/CFS Care: A Conversation with Dr. Hacohen and Jennifer...
Read MoreBorrowing and Holding Onto Hope: A Journey Through Long COVID and ME/CFS
Borrowing and Holding Onto Hope: A Journey Through Long COVID and ME/CFS Living with Long COVID...
Read MoreAre Long COVID Research and Education Leading to Better Treatment and Care?
Are research and education on Long COVID translating into better treatment and care for those with...
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Lisa Mokovic
Health Coach
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Jason Moran
Yoga Trainer
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Kiana Chapman
Yoga Trainer
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David Bones
Health Coach
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Kathy Beck
Yoga Trainer
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Sara Doe
Yoga Trainer
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