CFSAC Education Workgroups Seeking Patient Input

by | Jun 15, 2017 | Clinical Care, ME/CFS, Patient Voice

CFSAC Feedback Surveys

BHC has converted their questions into a simple online questionnaire

cfsacThe Chronic Fatigue Syndrome Advisory Committee (CFSAC) provides advice and recommendations to the Secretary of Health and Human Services (HHS) through the Assistant Secretary for Health on issues related to myalgic encephalomyelitis and chronic fatigue syndrome (ME/CFS). Administrative and management support for CFSAC is provided by the HHS Office on Women’s Health in the Office of the Assistant Secretary for Health (OASH). Patient and other stakeholder participation is encouraged and sought.


The next CFSAC meeting, scheduled for June 29th and 30th, will be a webinar. At this meeting, the Medical Education Workgroup and the Pediatric Education Workgroup will each be reporting to CFSAC on the work they have been doing thus far. In an effort to inform their continued efforts, the Working Groups would like to hear from the public.


In an effort to make it easier for patients to respond, the Bateman Horne Center has taken their questions – exactly as presented – and created two simple, quick electronic surveys. Prior to the meeting, we will compile a comprehensive report of all responses and submit them to the working groups and the committee for their consideration.

Please take a moment to make your voice heard and allow your experiences to inform the process.


Anyone wishing to participate in the meeting live is invited to dial in.

Source: U.S. Department of Health and Human Services

  • June 29-30, 2017 CFSAC Meeting (Webinar) Dial-in Information :
    * Call in Number 1-888-788-9429
    * Participant Passcode: 4510479
    * Webinar access: HERE