My name is Lisa O’Brien, and I am a COVID Long Hauler and the founder of the Utah COVID-19 Long Haulers group, a group I started almost a year ago when no one would take me seriously after being sick for several months. I knew there would be others in my community who...
Orthostatic Intolerance
Education & Outreach 2020 to 2021
When I first started developing patient and provider education on ME/CFS/FM, post-viral illnesses and related conditions, I had no idea just how transformational one year could make in my role. The precedence placed on increasing the medical community's understanding...
Research: Validating Innovative Pathways
It's Research Week at Bateman Horne Center! This means that as part of our Mission Possible giving campaign we fill you in on why research is so important to our organization and how we are using it to improve the lives of those with ME/CFS, fibromyalgia, post-viral...
Wearable Device Research Published in Medical Journal
Turning a Self-Report Questionnaire into a Wearable Device Well-defined and reliable tools are needed for objective diagnosis and to measure clinically relevant outcomes of treatment for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The 2015 Institute...