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Communication – Meeting Your Critical Needs

Communication – Meeting Your Critical Needs

Chapter 5: Communication – Meeting Your Critical Needs. During a crash, it can be difficult to communicate with others. This section references downloadable and printable communication cards to help you communicate your needs. Consider keeping these in your bedside Crash Care Kit or on your electronic device to point/show your caregiver, loved one, or support services.

22 Years of Illness: A Perspective on Gratitude

22 Years of Illness: A Perspective on Gratitude

If you are reading this, congratulations!  You have survived another day.  And that’s something when you’re living with or supporting someone with diseases like myalgic encephalomyelitis, fibromyalgia, long Covid, POTS, mast cell activation syndrome, and similarly complicated fatiguing illnesses. (Even listing them is exhausting!)

What is ME/CFS and Understanding a Crash

What is ME/CFS and Understanding a Crash

What is ME/CFS and Understanding a Crash

Living with diseases like ME/CFS requires the affected individual to understand the defining characteristic of the disease, post-exertional malaise (PEM), and what it means when the body is pushed into a deep state of PEM, known as a crash. Awareness about how crashes occur, and how to meet the body’s critical needs during a crash, will afford the individual more control over their healing process and living with the disease.

Communication – Meeting Your Critical Needs

Communication – Meeting Your Critical Needs

Chapter 5: Communication – Meeting Your Critical Needs. During a crash, it can be difficult to communicate with others. This section references downloadable and printable communication cards to help you communicate your needs. Consider keeping these in your bedside Crash Care Kit or on your electronic device to point/show your caregiver, loved one, or support services.

22 Years of Illness: A Perspective on Gratitude

22 Years of Illness: A Perspective on Gratitude

If you are reading this, congratulations!  You have survived another day.  And that’s something when you’re living with or supporting someone with diseases like myalgic encephalomyelitis, fibromyalgia, long Covid, POTS, mast cell activation syndrome, and similarly complicated fatiguing illnesses. (Even listing them is exhausting!)

What is ME/CFS and Understanding a Crash

What is ME/CFS and Understanding a Crash

What is ME/CFS and Understanding a Crash

Living with diseases like ME/CFS requires the affected individual to understand the defining characteristic of the disease, post-exertional malaise (PEM), and what it means when the body is pushed into a deep state of PEM, known as a crash. Awareness about how crashes occur, and how to meet the body’s critical needs during a crash, will afford the individual more control over their healing process and living with the disease.