May 2019, the international accredited conference, Invest in ME Research, opened its doors to presenters from around the globe. The conference, held in the United Kingdom and hosted completely by this nonprofit, aimed to increase research collaboration with the full spectrum of ME/CFS constituents including journalists, researchers, and physicians. After fourteen years of quality presentations, the conference aimed to address a variety of topics, from establishing a Center of Excellence to increasing research funding for ME/CFS in the United Kingdom.
After a successful debut last year, the conference now includes a session for early-career researchers to network and present new ME/CFS research to others in the field. This session, held on May 28, featured a representative from the US’s National Institute of Health as well as young researchers from around the world. Topics included emerging research areas such as mast cell activation and analysis, neuro-inflammation, and metabolic profiling in ME/CFS.
This year, we were delighted to announce that a member of our clinical research team, Jihyun Lee, not only attended this conference but won a travel award for the event. In addition, Jihyun gave a presentation titled “Using Hours of Upright Activity (HUA) to Screen for Orthostatic Intolerance in ME/CFS.” This presentation occurred in Washington DC at the young investigator NIH meeting called Thinking the Future, and it examined how hours of upright activity, along with other measures, can be useful clinical tools for estimating the impact of orthostatic intolerance and the symptom severity of ME/CFS.
Patients everywhere deserve access to informed, helpful, and compassionate clinical care. Bateman Horne Center is improving access to care through our medical provider education programs while simultaneously creating useful resources and support systems to impact today’s quality of life for patients everywhere. Our clinical research team is hard at work moving us closer to effective treatment options.
We gratefully thank you for your continuing support.