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Nutrition and Hydration
Chapter 8: The following are examples of quick, easy, nutrient-rich foods and hydration options that can be integrated into everyday living with ME/CFS, orthostatic intolerance, and during a crash. In living with ME/CFS you may experience fluctuating motility, stomach and body sensitivities, nausea, etc. Be careful when introducing any new items into your system. Start slow, work with your medical care team while being mindful of any known intolerances or mast cell triggering substances.
Medication
Chapter 7: Brain fog can make it easy to forget your medication routine when you are experiencing PEM or moving into a crash. Delayed or missed medications can exacerbate a crash and/or slow your crash recovery.
Turn Down the Volume & Allow Recovery
Chapter 6: There are many environmental triggers and stimuli that can precipitate and/or prolong crash recovery. Try to minimize all energy demands, sensory and physical stimuli, and allow your body the space to restore and recharge.
Communication – Meeting Your Critical Needs
Chapter 5: Communication – Meeting Your Critical Needs. During a crash, it can be difficult to communicate with others. This section references downloadable and printable communication cards to help you communicate your needs. Consider keeping these in your bedside Crash Care Kit or on your electronic device to point/show your caregiver, loved one, or support services.
Conserve Energy – During Movement & Daily Life
This blog post covers the fourth chapter of the ME/CFS Crash Survival Guide. The information provided can also apply to individuals with long COVID and other multi-system chronic complex illnesses that have a PEM component. Click here to download the entire guidebook....
Emergency Contact & Health Information
This blog post covers the third chapter of the ME/CFS Crash Survival Guide. The information provided can also apply to individuals with long COVID and other multi-system chronic complex illnesses that have a PEM component. Click here to download the entire guidebook....
Potential Targets for ME/CFS Clinical Trials
Potential Targets for ME/CFS Clinical Trials This week showcased Bateman Horne Center’s strategic plan in action. The new research published in two separate papers in the prestigious journal, Cell Host & Microbe, provided further evidence that the microbiome and...
News Release: Microbiome Disturbances in ME/CFS
Signature microbiome disturbances in ME/CFS may point to biomarker and treatment trials New research reveals differences in the gut microbiomes of people with myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) compared to those of healthy controls. ME/CFS is...
22 Years of Illness: A Perspective on Gratitude
If you are reading this, congratulations! You have survived another day. And that’s something when you’re living with or supporting someone with diseases like myalgic encephalomyelitis, fibromyalgia, long Covid, POTS, mast cell activation syndrome, and similarly complicated fatiguing illnesses. (Even listing them is exhausting!)
When a Crash Strikes
This blog post covers the second chapter of the ME/CFS Crash Survival Guide. The information provided can also apply to individuals with long COVID and other multi-system chronic complex illnesses that have a PEM component. Click here to download the entire guidebook....
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Lisa Mokovic
Health Coach
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Jason Moran
Yoga Trainer
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Kiana Chapman
Yoga Trainer
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David Bones
Health Coach
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Kathy Beck
Yoga Trainer
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Sara Doe
Yoga Trainer
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