Posts Tagged ‘self-care’
Raising Awareness for ME/CFS in Petaluma, California
Dr. Bateman traveled to Petaluma, California for a ME/CFS benefit concert on October 5, 2019. This benefit concert featuring singer-songwriter, Marian Call, was designed to entertain, inform, and raise awareness for this debilitating disease. Marian Call’s sound is clever and unique, by turns humorous and heartbreaking; the perfect fit for an audience comprised of those…
Read MoreOvercoming Barriers to Access Care, Dr. Bateman
In this month’s education meeting, Lucinda Bateman, MD, presented ways patients and medical providers can overcome barriers to compassionate care. There are four main barriers to compassionate care: ignorance, the nature of the illness, financial constraints, and difficulty visiting the doctor. Barrier One: Ignorance When it comes to helping people with ME/CFS, many medical providers…
Read MoreImproving Quality of Life with Chronic Illness, Dr. Sherlock
In this month’s education meeting we were pleased to hear from Elizabeth Sherlock, PhD, a clinical psychologist who joined the Bateman Horne Center in 2018. She moderates support groups for patients and caregivers. Doctor Sherlock has a great deal of experience with ME/CFS. Her son had the illness for 20 years and died at the…
Read MoreCoping with Chronic Illness with Pema Chödrön
Pema Chödrön is an American Tibetan Buddhist. Pema has led extensive discussions on working with chronic illness, specifically ME/CFS. A generous and anonymous donor has secured permission to share this video clip with our community to assist patients with this helpful coping discussion.
Read MoreService Animals for Mobility Support with Chronic Illness
August’s education meeting featured Kelley Rosequist, owner of Dog Training Elite Utah. She provided information on service dogs and specifically on how service dogs can provide mobility support for those with fibromyalgia, ME/CFS and other chronic illnesses. What Makes a Service Animal? Service animals, by definition, are animals that are trained for specific tasks to…
Read MoreWhat’s Next for the ME/CFS Clinician Coalition?
On March 15-16, leading ME/CFS clinicians from across the United States gathered in Salt Lake City for the second annual ME/CFS Expert Clinician Summit. The goal of this summit was to grow the collaborative network of disease experts, identify ways to expand their ranks and improve the clinical care of patients with ME/CFS, and accelerate…
Read MorePelvic Health and Chronic Illness
We were pleased to host Dr. Lauren Johnson—Doctor of Physical Therapy and current Director of the Pelvic Physical Therapy and Wellness Clinic in the Salt Lake City, Utah for our March Education Meeting. In this presentation, Dr. Johnson taught about pelvic health, how pelvic symptoms relate to ME/CFS and fibromyalgia symptoms, and how professionals can…
Read MoreFatigue, Pain and Sexual Health
Navigating intimacy with your partner can be hard enough without the added stressors of ME/CFS and fibromyalgia. We realize that discussing intimacy and sex may be taboo for some, but are nevertheless integral in a holistic view of health for every individual. We urge you to begin to break apart this taboo if it exists…
Read MoreEmpowerment Through Preparation
Living with ME/CFS or fibromyalgia, important, energy consuming events can be absolutely overwhelming and impossible. In September’s education meeting, Linda Milne – a longtime patient and community member of the Bateman Horne Center – shares her knowledge about preparing for natural disasters, travel, and volunteering while living with chronic illness. Empowerment through Preparation Medical complications…
Read MorePatient Voice – Meditate to Find Peace
Three years ago, Megan Hastings began most mornings with a quick run and some meditation. Today, the effects of her illness make running impossible, but she finds she can meditate to bring comfort and peace. The practice helps her to reduce stress, increase self-awareness, happiness and acceptance. Megan, mother to three and devotee to her best friend, has a…
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