Follow us on social media
1-801-359-7400 | [email protected]

Posts Tagged ‘POTS’

When Mommy Can’t Dance: How to Be a Chronically Ill Mom

It’s a hard to be a sick mom. For most mothers, a few days of illness may mean a back-up of laundry and a night or two of frozen pizza or cold cereal for dinner. For those of us moms that are chronically ill, it’s a whole other ball game. Certainly we have to adapt, get creative, and employ as many mom hacks as we can (i.e. Amazon prime, grocery pick up, self-serve kid snacks, and yes, we still have an above average number of cereal dinners). Beyond the physical demands and limitations, however, are the mental and emotional obstacles that we face. The mom guilt is present enough when you are healthy; it can be even more crushing when you are not.

Read More

Redefining POTS so that Everybody Understands

Redefining POTS

“Redefining POTS so that everybody understands: a primary care pediatric sports medicine perspective and review” Presented by Dr. Craig Colebey   Postural Orthostatic Tachycardia Syndrome or POTS is a disabling disorder, representing “a common pathway” for multiple different causes.  The heterogenous nature of its pathophysiology presents a challenge in its diagnosis and treatment.  I present…

Read More

A Report of Research Progress in 2016

Research Progress

Because of the investment of many supporters – donors large and small – the Bateman Horne Center (BHC) has been able to partner with cutting-edge researchers across the globe. BHC works directly with researchers to enroll well-categorized patients into their research, providing samples with material transfer agreements in place so that we continue to learn from…

Read More

Global Report of Progress with Lucinda Bateman, M.D.

progress report

An ME/CS Progress Report Lucinda Bateman, MD, BHC Founder and Medical Director, is actively engaged in ME/CFS and FM thought leadership across the globe. In October she was on the road to take part in and advance the discussions that lead to progress. In a few short weeks she participated in: October 8th – SMCI Scientific…

Read More

What’s the Buzz – October

Whats the Buzz

Buzz – October: Each month we scour the Internet to bring you a summary of news articles, blogs and research publications we think you’ll find interesting for our What’s the Buzz post. This month, Suzanne D. Vernon, PhD, BHC Research Liaison, highlights and summarize two recent research publications for you:   The Importance of Measuring Symptoms ME/CFS is…

Read More

Exploding Myths of Chronic Illness in Family Life

exploding myths

Presented by Heather Jarman When serious illness is diagnosed in a young person, parents are often the first people called upon to be medical caregivers for their child. Few parents are adequately prepared for the enormity of the challenges associated with such a massive life change, regardless of a child’s age. Part of making the…

Read More

What’s the Buzz – April

Buzz - January 2017

  Buzz – April: Each month we scour the Internet and bring you a list of news articles, blogs and research publications we think you’ll find interesting for our What’s the Buzz post. Occasionally, we’ll highlight and summarize a few of them for you, like these:   It is estimated that at least 50% of ME/CFS and Fibromyalgia patients…

Read More

Remaining Upright: Approach to Orthostatic Intolerance

Orthostatic intolerance

In this educational seminar, Dr. Cortez defines Orthostatic Intolerance and provides an overview of the anatomy involved. She introduces various clinical lab tests and discusses their role in diagnosis then offers several case illustrations from diagnosis to management. She then ends her talk with several conclusions and take home points. Remaining Upright: Approach to Orthostatic…

Read More