Posts Tagged ‘ME/CFS & Fibromyalgia Research’
ME/CFS Clinicians Reconvene in Salt Lake City
Leading U.S. ME/CFS experts will convene for the Second Annual ME/CFS Clinician Summit on March 15-16 in Salt Lake City, Utah. This event is significant because it marks progress and forward momentum for this dedicated group as they tackle the ambitious goal of mainstreaming ME/CFS in the medical community and improving the clinical care of people…
Read MoreJonas Blomberg: BHC Remembers A Gentle Soul and Bright Scientist
Dr. Bateman shares, “When I first met Jonas, while in Sweden in 2016 to deliver a lecture on the IOM clinical diagnostic criteria for ME/CFS, I sensed immediately that he had a keen scientific mind and was genuinely intrigued by ME/CFS. We had several conversations about the clinical manifestations of ME/CFS…
Read MoreNew Research: Gene Variations in ME/CFS
This is one of the largest ME/CFS epigenetic studies to date and identifies new genetic and epigenetic associations relevant to ME/CFS and useful for the development of new treatments. Samples from a well-defined clinic population of ME/CFS patients were used.
Read MoreGenetics and Epigenetics in ME/CFS
This is one of the largest ME/CFS epigenetic studies to date and identifies new genetic and epigenetic associations relevant to ME/CFS and useful for the development of new treatments. Samples from a well-defined clinic population of ME/CFS patients were used.
Read MoreBHC Strives for Excellence
As asserted in our mission statement, the Bateman Horne Center envisions a world where patients with ME/CFS and Fibromyalgia (FM) are readily diagnosed, effectively treated, and widely met with empathy and understanding. To achieve this vision, the BHC is progressing toward becoming a center of excellence for ME/CFS and FM, a process that was the…
Read MoreNIH Announces Precision Medicine Initiative
Research tends to neglect ME/CFS and FM – until right now. Precision medicine is the emerging scientific idea that medical treatment can and should be maximally efficient by tailoring medicine and healthcare to individual circumstances. Current research studies, however, do not have the size and diversity necessary to produce enough statistical power for individualized treatments.…
Read MoreAccelerating ME/CFS Research Through Brain Donation
So often, people with ME/CFS are told to “get over it” since “it’s all in your head.” While this is devastatingly inaccurate, there is an unintended glimmer of truth here – the brain plays an important role in ME/CFS. According to Research Director Suzanne Vernon, “The brain is the command and control center. There is…
Read MoreNovel Gene Variants in ME/CFS and Fibromyalgia
Presented by Alan R. Light, PhD. In February 2017, Dr. Light began a new NIH-funded research grant, Novel Gene Variants in ME/CFS and Fibromyalgia. This is a continuation of earlier work which discovered a number of novel variants in both chromosomal and mitochondrial genes that could contribute to the symptoms found in patients. This talk…
Read MoreWhat’s the Buzz – January 2017
Buzz – January 2017: We scoured the Internet to bring you a list of news articles, blogs and research publications we think you’ll find interesting for this month’s What’s the Buzz post. On January 27th, the NIH made two big announcements of federal funding for ME/CFS collaborative research centers and Data Management and Coordinating Centers. While some feel the…
Read MoreA Report of Research Progress in 2016
Because of the investment of many supporters – donors large and small – the Bateman Horne Center (BHC) has been able to partner with cutting-edge researchers across the globe. BHC works directly with researchers to enroll well-categorized patients into their research, providing samples with material transfer agreements in place so that we continue to learn from…
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