Posts Tagged ‘diagnostic tools for ME/CFS’
BHC Participates in NIH-Sponsored ME/CFS Meeting
The NIH will host 3 days of meetings focusing on ME/CFS research. The meeting on April 3 is titled, “Thinking the Future: A Workshop for Young Early Career ME/CFS Investigators”. This is followed on April 4–5 with a meeting titled, “Accelerating Research on ME/CFS”. The presentations for this meeting will be given by the veteran…
Read MoreA Consensus-Driven ME/CFS Clinician Coalition Takes Shape
On March 2-3, 2018, the Bateman Horne Center hosted an exciting summit of leading U.S. ME/CFS clinicians who came together to share their pearls of wisdom on diagnosis and treatment in order to improve ME/CFS clinical care and refine more precise research targets. The meeting was remarkable for the ambitious nature of the agenda, the enthusiastic…
Read MoreWhat I Learned from the NASA 10-Minute Lean Test
Written by a patient who participated in a BHC research study to validate a new protocol used to assess orthostatic intolerance. Here she shares what she unexpectedly learned from her NASA 10-Minute Lean Test at BHC To be perfectly honest, when I decided to participate in the NASA Lean Test Research study at BHC, I…
Read MoreNASA 10-Minute Lean Test
A Simple Way to Assess Orthostatic Intolerance On June 7, 2017, at the monthly BHC Education Meeting, Pelle Wall, BHC Research Coordinator, reviewed the procedure and shared information about the research underway. Orthostatic intolerance (OI) is an umbrella term used to describe abnormal autonomic nervous system response to orthostatic challenge. Orthostatic hypotension (OH), neurally mediated hypotension (NMH) [or…
Read MoreStandardizing Measurement of ME/CFS Core Symptoms
Dr. Suzanne D. Vernon, BHC research liaison, explains how the IOM report defining the core symptoms of ME/CFS also define the BHC research roadmap. ________ At the October 2012 CFS Advisory Committee meeting Dr. Sandra Kweder, Deputy Director of the Office of New Drugs at the FDA stated, “When there is confusion, lack of consensus…
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