Uncategorized

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Pass or Fail? A Young Patient’s Perspective

Pass or Fail? A Young Patient’s Perspective

Written by Brooklyn Ingram, a young person with ME/CFS, this blog post describes her refusal to be defined by a disease. Read more of her blog Future Dead Person here. We live in a culture that demands clearly defined roles for every individual. I see these roles in...

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A Retrospective & Recognition

A Retrospective & Recognition

Dr. Bateman shares a retrospective look at the progress made by Bateman Horne Center in the last two years.  She honors the contribution of Leigh Reynolds and looks ahead with excitement to the future for those impacted by ME/CFS.  Six or seven months into the 2015...

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Not Without ME

Not Without ME

A Research Update On May 3rd, at the monthly BHC Education Meeting, Linda Avey and Suzanne D. Vernon, PhD discussed their cutting-edge research collaboration. Linda described how her team is working together with the Bateman Horne Center to track data, chart...

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CFS Advisory Committee (CFSAC)

CFS Advisory Committee (CFSAC)

The Chronic Fatigue Syndrome Advisory Committee (CFSAC) provides advice and recommendations to the Secretary of Health and Human Services (HHS) through the Assistant Secretary for Health on issues related to myalgic encephalomyelitis and chronic fatigue syndrome...

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Biomarkers or Bust

Biomarkers or Bust

Dr. Vernon explains why for the Bateman Horne Center, the identification of biomarkers is mission-critical... It's Biomarkers or Bust! __________ Back in 2008 when I was advocating on the Hill and at NIH for greater research dollars for ME/CFS research I was told,...

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