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Pass or Fail? A Young Patient’s Perspective

Written by Brooklyn Ingram, a young person with ME/CFS, this blog post describes her refusal to be defined by a disease. Read more of her blog Future Dead Person here. We live in a culture that demands clearly defined roles for every individual. I see these roles in...

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Not Without ME

A Research Update On May 3rd, at the monthly BHC Education Meeting, Linda Avey and Suzanne D. Vernon, PhD discussed their cutting-edge research collaboration. Linda described how her team is working together with the Bateman Horne Center to track data, chart...

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CFS Advisory Committee (CFSAC)

The Chronic Fatigue Syndrome Advisory Committee (CFSAC) provides advice and recommendations to the Secretary of Health and Human Services (HHS) through the Assistant Secretary for Health on issues related to myalgic encephalomyelitis and chronic fatigue syndrome...

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Biomarkers or Bust

Dr. Vernon explains why for the Bateman Horne Center, the identification of biomarkers is mission-critical... It's Biomarkers or Bust! __________ Back in 2008 when I was advocating on the Hill and at NIH for greater research dollars for ME/CFS research I was told,...

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