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Posts Tagged ‘patient stories’

Empowerment Through Preparation

Living with ME/CFS or fibromyalgia, important, energy consuming events can be absolutely overwhelming and impossible. In September’s education meeting, Linda Milne – a longtime patient and community member of the Bateman Horne Center – shares her knowledge about preparing for natural disasters, travel, and volunteering while living with chronic illness. Empowerment through Preparation  Medical complications…

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Nutrition: How Food Choices Impact How You Feel

The Whole Sisters (Nan Jensen and Nicole Bangerter) shared their journey with chronic illnesses at the September education meeting. View this presentation to learn about how food choices can affect symptoms. Visit their website for ideas on healthy food choices. Nan and Nicole discuss the importance of organic choices, the “dirty dozen” and the “clean fifteen”. They share tactics to develop self awareness and guidelines for reducing symptom presentation including recipe ideas.

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Patient Voice – Meditate to Find Peace

Meditate to Find Peace

Three years ago, Megan Hastings began most mornings with a quick run and some meditation. Today, the effects of her illness make running impossible, but she finds she can meditate to bring comfort and peace. The practice helps her to reduce stress, increase self-awareness, happiness and acceptance. Megan, mother to three and devotee to her best friend, has a…

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Patient Voice – Look For Surprises

Look for Surprises

Still reeling from her diagnosis, Nicole shares how three surprises took her down a path that led her to help, hope and BHC. Nicole Paolucci Rabanal is a wife, mother, friend and physical therapists from Steamboat Springs CO. Upon returning to health she looks forward to living her life fully again as a wife, mother,…

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Living With a Partner Who Has ME/CFS or FM

Partner with ME/CFS or FM

Chronic illness and marriage is a complicated combination. It’s rare to see  or hear a healthy spouse’s perspective on their partner’s disease because it is a topic that can be very difficult – as much for the one speaking as for the one hearing it. With an estimated divorce rate as high as 75% among…

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Overcome Fear After Diagnosis

Being diagnosed with a chronic illness such as ME/CFS or Fibromyalgia can be quite a blow. Being afraid is one of the most common reactions to forced changes, but it isn’t something you should let consume your life. It’s normal to experience a range of emotions in the wake of such a diagnosis. However, you…

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My Story in Art

story in art

When you are living with chronic illness like ME/CFS and Fibromyalgia, engaging in healthy grieving can be among the many challenges. You may face periods of shock and numbness, denial, anger, and intense emotional pain. Experts say it is essential that you engage your grief reaction and practice patience with yourself as you learn to express…

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Patient Voice – Back to School

back to school

Topic for September: Tell us about something your chronic illness has taught you. Living with ME/CFS and Fibromyalgia, so much is lost, but many tell us of the things they’ve gained as well. How have you learned to live a full life, in spite of living with a debilitating disease? Have you had moments when you thrive? What…

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Finding Recreation Again

National Ability Center

When someone is living with a debilitating chronic illness, one of the first things come to an end is any kind of recreational activity, for self and for the family. There are a number of adaptive recreation organizations across the US that can help people of all abilities – even ME/CFS and Fibromyalgia – enjoy many activities again.…

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Ten Minutes in Living Color

ten minutes

In this entry of the Patient Voice, Anne shares how her love of quilting, and carving out just a few minutes at her longarm frame, brought her ten minutes in living color – a sense of normalcy and bliss. If you have a similar story to tell, please share it with us. Learn more about…

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