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Dr. Bateman Determined to Power-Up in 2017

Dr. Bateman, BHC founder and medical director, reflects on the progress in 2016 and plans to power-up her dedication to patients.
Power-Up, We are all fighters

Dr. B Reminds us “We Are All Fighters”

old office shot with turtles 2

Packing up the Turtles for the Big Move

__________

The “wear wild socks” year was amazing, marked by the quick-paced steps of the turtle-carrying-hares toward illness recognition and biomarker discovery.  (Read how it all began HERE.)  The recipe for this success has been the collective ever-stronger voice of patients, caregivers, advocates, donors, providers, scientists and federal employees— virtually powerless for decades as individuals, now stronger and unstoppable as a team.

As I write, my email is “dinging” with the announcement of federal funding for ME/CFS collaborative research centers and Data Management and Coordinating Centers. I could take my wild socks off right now if research biomarkers were the only goal, but we still need this science to change what happens in the clinic.

Sadly, despite scientific progress, most patients still have trouble getting compassionate and skilled medical care from physicians.  There are still only a handful of experienced clinical ME/CFS and FM specialists. The number of patients seeking medical care exponentially outnumbers the experienced providers available. Most patients still feel marginalized and afraid. Most lack basic informed care from medical professionals, relying instead on internet resources, YouTube videos and social media. But we don’t have to wait for the fruits of Collaborative Research Centers to achieve the goal of accessible medical care.

My 2017 goal is to actively introduce the science of ME/CFS and FM to clinicians in academic institutions, health organizations, and private practice. 

  • It is time for primary care clinicians to be part of our collective strong voice.
  • It is time for all specialists to understand how ME/CFS and FM impacts delivery of their care.
  • It is time to train young physicians, physician assistants and nurse practitioners.

 

It will take a dedicated, diverse, and determined team to  drive progress where we need it to go!

How quickly this can be accomplished will depend, in part, on the ability of BHC to raise money, hire and train well qualified medical staff.  I’m  also counting on the involvement and support of my patients, ever seeking creative and impactful ways to engage them in the process and progress.

baseball hat

Dr. B and Suzanne D. Vernon, PhD, BHC research liaison

As a visible symbol of this goal I am going to POWER UP my wardrobe [ugh… I truly hate wearing anything that’s not thrifty or casual] and working each day to stand out. I will either wear a WHITE COAT [ugh ugh, really not my favorite], or don other “power” clothing in my visible role as a physician.  (Hmmm…this could get expensive; my wardrobe is overwhelmingly casual. But worth investing in to make a powerful statement!)

I want YOU to wear wild socks, challenge your friends and loved ones to do the same, maintain hope, speak up, stand out, volunteer, take action and donate if you can.

Together we can #SockItToME/CFSandFM

Bateman Signature

6 Comments

  1. Robin Ayers on February 1, 2017 at 1:57 am

    Wow, even willing to wear a white coat! 🙂 I hate those things!
    I really appreciate your dedication and hard work on our behalf Dr. B. You, Patti and the clinic staff are an oasis. A place of safety and compassion for all of us.
    Thank you.



  2. Denise Moore on February 1, 2017 at 8:34 am

    Hi BHC,
    My daughter Anna is a BHC patient. I was speaking with a friend whom it seems now has a teen Dx’d with Fibro. This friend I met on a parent support group 15 yrs ago for periodic fever syndrome’s her daughter has HIDS. My friend Linda is a researcher as is her husband (a chemical engineer) when it comes to their kids health. It seems Linda discovered that CHOP ( Children’s hospital of Philadelphia) has a Pediatric Fibro clinic and they are trialing a program of intense exercise for several weeks which I guess reset’s nerves so Fibro kids in the end have less pain. Linda got a copy of the protocol and worked with a local PT ( she lives in Vancouver Canada) to follow the protocol. She feels it did make a difference for her daughter. What have you heard about this and would it benefit adults? Linda had also started her daughter on Curcugel BCM 95, have you heard of this supplement and whether it is of benefit. Thx for any thoughts.
    Sincerely,
    Denise Moore



  3. Kiersten on February 6, 2017 at 6:52 pm

    I’ll grab your rss feed as I can not find your e-mail subscription link or e-newsletter service.
    Do you have any? Kindly permit me know in order that I could subscribe.
    Thanks.



  4. Mary Cohn on February 10, 2017 at 5:42 pm

    You are an inspiration to us all to Power Up….even if we have to sometimes pace and power down. I have a closet full of now unneeded power clothes you are welcome to have (ha!) and have found it is not only possible but quite fashionable and fetching (and still awfully powerful) to offer a peek of those crazy socks under the amped-up ensemble! Thanks for ally do



  5. Cheryl Stanley on February 11, 2017 at 7:36 am

    Im just a 58 yr old patient diagnosed with Lupus, Fibromyalgia, CFS, Connective Tissue Disease and a couple of heart attacks, 12 stents then in November of 2014 had open heart surgery, a double by-pass. All I can say is Im mentally and physically EXAUSTED horribly BAD. I’ve had friend’s come over and Ive just fallen asleep in the chair!! Dinner, cleaning is EXHAUSTING!!!
    I wished life were better. I consistently sleep 12 hour days of HARD sleep!!!
    I’ve had my husband try and wake me 4-5 times and gives up most of the time.
    Over stimulating situations exhaust me mentally then physically.
    When I was in my late 20’s I wss FINALLY diagnosed with Lupus and given a 10 year death sentance. To look at me I look as nothing other than being 80 lbs overweight looks like, otherwise people have no clue I’m disabled!!
    I had pheunmonia for one SOLID year before any Dr could diagnose me!!
    The Lupus attacked my antibodies as a forien invader and I was given a shot of the live virus and got well!!
    I was latter diagnosed with Fibromyalgia and Connective Tissue Disease.
    I’m considering leaving my organs for research. I don’t know if there is ANYTHING I could do to help other’s who are suffering as I have all these year’s. Is there blood work that would help any researcher’s?? DNA tests?? Id be willing to do something so other’s don’t have to live as I have!
    Ive got a metal plate i. My neck at C4-C5 its herniated above and severely below, then 4 herniated disks in my lower lumbar 2 of them severe. Im having the nerves burnt to tolerate the pain and NOT have anymore surgeries because your never the same. Please let me know if I can help in anyway!
    Regards