Follow us on social media
1-801-359-7400 | [email protected]

ME/CFS Clinicians Reconvene in Salt Lake City

Leading U.S. ME/CFS experts will convene for the Second Annual ME/CFS Clinician Summit on March 15-16 in Salt Lake City, Utah. This event is significant because it marks progress and forward momentum for this dedicated group as they tackle the ambitious goal of mainstreaming ME/CFS in the medical community and improving the clinical care of people with ME/CFS.

There are an estimated 1 to 2.5 million people in the US with ME/CFS; between 80-90% remain undiagnosed. With no biomarkers or ways to objectively measure critical aspects of ME/CFS, patients are often ignored by modern medicine despite the overwhelming base of evidence for this disease.

The Institute of Medicine published a landmark report in 2015 providing the tools for physicians to make the diagnosis of ME/CFS. But the diagnostic criteria have yet to be widely adopted by the medical community and doctors still lack knowledge about how to treat this devastating disease.

The ME/CFS Clinician Coalition intends to change that through these primary goals and strategic outcomes:

  • Enhance and grow a collaborative network of US providers with strong expertise in ME/CFS.
  • Summarize key diagnostic and treatment methods and the supporting peer-reviewed science and best clinical practice to inform standards of care for ME/CFS.
  • Build the ranks of informed physicians nationwide through medical provider educational materials and programs.
  • Advance the ME/CFS research agenda with data, clinical observations, and intuition-based findings from expert practice. This feedback will include recommendations for treatment trials, identification of possible illness subsets, and observations of illness presentation.

The physicians in this strategic group include:

  • Dr. Lucinda Bateman – Internal Medicine, Salt Lake City, Utah
  • Dr. Alison Bested – Hematological Pathologist, Miami, Florida
  • Dr. John Chia – Torrance, California
  • Dr. Theresa Dowell – Family Nurse Practitioner, Flagstaff, Arizona
  • Dr. Susan Levine – Infectious Disease, New York, New York
  • Dr. Anthony Komaroff – Internal Medicine, Boston, Massachusetts
  • Dr. David Kaufman – Internal Medicine, Mountain View, California
  • Dr. Nancy Klimas – Immunologist, Miami, Florida
  • Dr. Charles Lapp – Charlotte, North Carolina
  • Dr. Jose Montoya – Infectious Diseases, Stanford University California
  • Dr. Ben Natelson – Neurologist, New York
  • Dr. Morris Papernik – Internal Medicine, Hartford, Connecticut
  • Dr. Dan Peterson – Internal Medicine, Incline Village, Nevada
  • Dr. Richard Podell – Internal Medicine, Summit, New Jersey
  • Dr. Irma Rey – Environmental Medicine, Miami, Florida
  • Dr. Andy Selinger – Family Medicine, Hamden Connecticut

This collaborative effort is led by Dr. Lucinda Bateman and Mary Dimmock, parent of a son with ME/CFS. After decades without clinical guidance, Cindy and Mary proposed an opportunity for the leading physicians to collect their clinical experience and intuition about ME/CFS.

This work has expanded into a strategic effort to bridge the gap between the science and medicine and better the clinical outcomes for patients everywhere.

If this content has been useful to you or a loved one, we invite you to check out our free online class series, explore our online library, read our blog, and subscribe to our monthly newsletter. We thank you for your continued support as we aim to improve today’s quality of life for ME/CFS and Fibromyalgia patients everywhere.

Please consider making a donation to BHC, a 501 (c)3 nonprofit organization today.