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Patient Education

Pelvic Health and Chronic Illness

We were pleased to host Dr. Lauren Johnson—Doctor of Physical Therapy and current Director of the Pelvic Physical Therapy and Wellness Clinic in the Salt Lake City, Utah for our March Education Meeting. In this presentation, Dr. Johnson taught about pelvic health, how pelvic symptoms relate to ME/CFS and fibromyalgia symptoms, and how professionals can…

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ME/CFS Clinicians Reconvene in Salt Lake City

Leading U.S. ME/CFS experts will convene for the Second Annual ME/CFS Clinician Summit on March 15-16 in Salt Lake City, Utah. This event is significant because it marks progress and forward momentum for this dedicated group as they tackle the ambitious goal of mainstreaming ME/CFS in the medical community and improving the clinical care of people…

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This is Personal: BHC’s Patient-First Perspective

Bateman Horne Center is guided by a board of directors that is intimately connected to ME/CFS and FM. Many have sons, daughters or are themselves managing an illness that has taken much of their life away. Most of you know that our organization is named after Dr. B, but many don’t realize it is also named after her sister, Shauna Horne.

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Fatigue, Pain and Sexual Health

Navigating intimacy with your partner can be hard enough without the added stressors of ME/CFS and fibromyalgia. We realize that discussing intimacy and sex may be taboo for some, but are nevertheless integral in a holistic view of health for every individual. We urge you to begin to break apart this taboo if it exists…

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Empowerment Through Preparation

Living with ME/CFS or fibromyalgia, important, energy consuming events can be absolutely overwhelming and impossible. In September’s education meeting, Linda Milne – a longtime patient and community member of the Bateman Horne Center – shares her knowledge about preparing for natural disasters, travel, and volunteering while living with chronic illness. Empowerment through Preparation  Medical complications…

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CFSAC: Current News in ME/CFS Federal Advocacy

ME/CFS advocacy groups play a significant role in educating wider community and government groups about ME/CFS. One such organization, the Chronic Fatigue Syndrome Advisory Committee (CFSAC), operates as an independent group providing formal recommendations on ME/CFS-related issues to The Secretary of Health and Human Services at the federal level of the United States government. CFSAC’s…

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NIH Announces Precision Medicine Initiative

Research tends to neglect ME/CFS and FM – until right now. Precision medicine is the emerging scientific idea that medical treatment can and should be maximally efficient by tailoring medicine and healthcare to individual circumstances. Current research studies, however, do not have the size and diversity necessary to produce enough statistical power for individualized treatments.…

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Public Awareness of ME/CFS : A Changing Story

Millions are missing. This tragically summarizes the status of research funding for ME/CFS and FM, the staggering financial blow to the economy as patients and caregivers decrease or withdraw their workforce involvement, and most importantly, the millions of people who are missing from communities all over the world due to these debilitating diseases. For decades,…

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Navigating the School System with Chronic Illness

School can be an exceptionally challenging struggle for students with ME/CFS and FM. This May, in our monthly education meeting, guest speaker Doctor Lane Valum shared crucial strategies for how to work with, instead of against, the school system in getting students the help and resources they need for academic success.  IEP and 504 Plans…

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Building Communities of Understanding and Hope

“Loneliness has the same impact on mortality as smoking 15 cigarettes a day, making it even more dangerous than obesity,” reports Douglas Nemecek, MD, Chief Medical Officer of behavioral health in a major new study on loneliness that outlines the prevalence and significance of loneliness and social isolation, as well as a handful of coping…

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