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Fibromyalgia

Keeping Spirits Bright: Managing the Post-Holiday Letdown

Some people, especially those with chronic disease, experience depression and/or seasonal affective disorder (SAD) after the holidays are over. Dr. Stuart Drescher, a psychologist experienced in working with patients with chronic diseases including ME/CFS and Fibromyalgia, gives tips on how to manage the letdown that often occurs in January and February, when the holidays are over and the days seem dark and dreary.

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When Mommy Can’t Dance: How to Be a Chronically Ill Mom

It’s a hard to be a sick mom. For most mothers, a few days of illness may mean a back-up of laundry and a night or two of frozen pizza or cold cereal for dinner. For those of us moms that are chronically ill, it’s a whole other ball game. Certainly we have to adapt, get creative, and employ as many mom hacks as we can (i.e. Amazon prime, grocery pick up, self-serve kid snacks, and yes, we still have an above average number of cereal dinners). Beyond the physical demands and limitations, however, are the mental and emotional obstacles that we face. The mom guilt is present enough when you are healthy; it can be even more crushing when you are not.

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BHC Program and Research Update

BHC’s mission is to empower patients, advance research, and improve clinical care. What is happening to further those goals? At the November education meeting, Dr. Lucinda Bateman and Dr. Suzanne Vernon shared updates on the programs BHC is developing to ensure that this mission is accomplished.  Highlights include development of a patient education program to empower patients, a practitioner education program that will improve clinical care, and implementation of a major research grant to advance the search for biomarkers.

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ME/CFS and Related Illness: Putting It All Together

Understanding how ME/CFS and Fibromyalgia are related to and affected by other illnesses is key in helping patients find relief from symptoms. At the BHC Education Meeting in October, Dr. Nathan Holladay gave a broad view of the key aspects of the various problems that can cause these diseases or make them worse, including infections, immune system issues, and mitochondrial, metabolic, and endocrine dysfunction. Making the connections between these illnesses can help doctors and patients decide on customized treatment methods rather than “one-size-fits-all” treatments.

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Nutrition: How Food Choices Impact How You Feel

The Whole Sisters (Nan Jensen and Nicole Bangerter) shared their journey with chronic illnesses at the September education meeting. View this presentation to learn about how food choices can affect symptoms. Visit their website for ideas on healthy food choices. Nan and Nicole discuss the importance of organic choices, the “dirty dozen” and the “clean fifteen”. They share tactics to develop self awareness and guidelines for reducing symptom presentation including recipe ideas.

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Building the Ranks of Skillful and Informed Medical Providers

informed medical providers

BHC Strategies for Bringing Doctors up to Speed on ME/CFS and FM  presented by Lucinda Bateman, MD, BHC Founder and Medical Director Improving the way medical providers understand, diagnose, and treat ME/CFS and Fibromyalgia is critical to progress and  a primary focus of the Bateman Horne Center. At the August 2nd BHC Education Meeting, Dr. Bateman shared her…

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Life Happens: Sleep, Weight, and Activity in Fibromyalgia

life happens

On July 5, Akiko Okifuji, PhD, presented “Life Happens” at the monthly Bateman Horne Center education meeting. Dr. Okifuji is a professor in the Department of Anesthesiology at the University of Utah. She has been actively conducting clinical research in chronic pain field, particularly in the area of fibromyalgia, for the past 20 years. She is…

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May 12 ME/CFS FM Awareness Day Celebrates 25 Years

May 12

On May 12th, individuals around the globe will be celebrating International ME/CFS and Fibromyalgia Awareness Day and 2017 marks the 25th anniversary. The May 12th date was chosen because it is Florence Nightingale’s birthday and she was believed to have suffered from ME/CFS. Every year a number of events are held to celebrate and highlight May 12th…

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Living With a Partner Who Has ME/CFS or FM

Partner with ME/CFS or FM

Chronic illness and marriage is a complicated combination. It’s rare to see  or hear a healthy spouse’s perspective on their partner’s disease because it is a topic that can be very difficult – as much for the one speaking as for the one hearing it. With an estimated divorce rate as high as 75% among…

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4 Tips to Improve Doctor-Patient Communication

doctor-patient communication

Effective doctor-patient communication is critical to building a therapeutic doctor-patient relationship, which is at the heart of delivering high-quality healthcare. When there is open and productive communication, doctors and patients are more effective in exchanging information, patients have greater comprehension of their medical issues, and they are more empowered in decision making about their own…

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