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Fibromyalgia

Building the Ranks of Skillful and Informed Medical Providers

informed medical providers

BHC Strategies for Bringing Doctors up to Speed on ME/CFS and FM  presented by Lucinda Bateman, MD, BHC Founder and Medical Director Improving the way medical providers understand, diagnose, and treat ME/CFS and Fibromyalgia is critical to progress and  a primary focus of the Bateman Horne Center. At the August 2nd BHC Education Meeting, Dr. Bateman shared her…

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Life Happens: Sleep, Weight, and Activity in Fibromyalgia

life happens

On July 5, Akiko Okifuji, PhD, presented “Life Happens” at the monthly Bateman Horne Center education meeting. Dr. Okifuji is a professor in the Department of Anesthesiology at the University of Utah. She has been actively conducting clinical research in chronic pain field, particularly in the area of fibromyalgia, for the past 20 years. She is…

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May 12 ME/CFS FM Awareness Day Celebrates 25 Years

May 12

On May 12th, individuals around the globe will be celebrating International ME/CFS and Fibromyalgia Awareness Day and 2017 marks the 25th anniversary. The May 12th date was chosen because it is Florence Nightingale’s birthday and she was believed to have suffered from ME/CFS. Every year a number of events are held to celebrate and highlight May 12th…

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Living With a Partner Who Has ME/CFS or FM

Partner with ME/CFS or FM

Chronic illness and marriage is a complicated combination. It’s rare to see  or hear a healthy spouse’s perspective on their partner’s disease because it is a topic that can be very difficult – as much for the one speaking as for the one hearing it. With an estimated divorce rate as high as 75% among…

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4 Tips to Improve Doctor-Patient Communication

doctor-patient communication

Effective doctor-patient communication is critical to building a therapeutic doctor-patient relationship, which is at the heart of delivering high-quality healthcare. When there is open and productive communication, doctors and patients are more effective in exchanging information, patients have greater comprehension of their medical issues, and they are more empowered in decision making about their own…

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Tips for Carepartners

Carepartner Help and Support

When Someone You Love has ME/CFS or FM There are many diseases that can be considered invisible, but there are substantial differences in how individuals are viewed culturally and socially, depending on their diagnoses. Diabetes, lupus, MS, and others can be invisible illnesses, but few would ever question the limitations of someone with one of…

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Novel Gene Variants in ME/CFS and Fibromyalgia

Novel Gene Variants

Presented by Alan R. Light, PhD. In February 2017, Dr. Light began a new NIH-funded research grant, Novel Gene Variants in ME/CFS and Fibromyalgia. This is a continuation of earlier work which discovered a number of novel variants in both chromosomal and mitochondrial genes that could contribute to the symptoms found in patients. This talk…

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What’s the Buzz – January 2017

Buzz - January 2017

Buzz – January 2017: We scoured the Internet to bring you a list of news articles, blogs and research publications we think you’ll find interesting for this month’s What’s the Buzz post.   On January 27th, the NIH made two big announcements of federal funding for ME/CFS collaborative research centers and Data Management and Coordinating Centers. While some feel the…

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Redefining POTS so that Everybody Understands

Redefining POTS

“Redefining POTS so that everybody understands: a primary care pediatric sports medicine perspective and review” Presented by Dr. Craig Colebey   Postural Orthostatic Tachycardia Syndrome or POTS is a disabling disorder, representing “a common pathway” for multiple different causes.  The heterogenous nature of its pathophysiology presents a challenge in its diagnosis and treatment.  I present…

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A Report of Research Progress in 2016

Research Progress

Because of the investment of many supporters – donors large and small – the Bateman Horne Center (BHC) has been able to partner with cutting-edge researchers across the globe. BHC works directly with researchers to enroll well-categorized patients into their research, providing samples with material transfer agreements in place so that we continue to learn from…

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