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Patient Voice – Being Heard

One of the most important things you can do for some one suffering from ME/CFS and Fibromyalgia is to be understanding, supportive and to listen. Just listening can be such a special gift to someone. Do you recall a time you really felt heard? Is there someone in your life who is a great support to you? What do you wish others knew about how to best support you?


In this latest topic for the Patient Voice, we’re inviting each of you to share with your fellow members of the ME/CFS and FM community, a story, poem, favorite song, or piece of artwork that reflects “Being Heard”.



At the Bateman Horne Center, empowering patients to find their strongest voice and live their best life is the first and most important component of our mission. It is infused into all that we do. Advancing research and improving clinical care wouldn’t mean as much if we didn’t first and foremost strive to strengthen community and share the beauty of the human spirit that lives within all impacted by ME/CFS and FM. In order to feel empowered, we know a person first needs to feel heard.

Perhaps you want to write a short story, submit a poem, or send a blog post? Or maybe you have some artwork, photography or a piece of music that reminds you of this? The Patient Voice is about lifting your voice a little higher and sharing your inspiring message, so be creative.

Our strongest stories come from the unforgettable moments in your life and the best submissions are about more than ME/CFS or FM. They include themes everyone can relate to — kindness, inclusion, acceptance, growth, struggles, challenges and so much more. They inspire people to think about situations and interactions differently. They offer perspectives you don’t see many other places. They’re less about your journey and more about the moments that mirror so many people’s journeys. In sharing your experience you’ll undoubtedly inspire others. 

Send your submission to [email protected]

Find all of the details on properly making a submission HERE